We first wanted to say THANK YOU for all those who made it
possible for us to have an amazing trip and an experience; one we thought we
would never be able to have!!! We know it was a sacrifice for several of our
family and friends and we are indebted to their kindness!
We had an amazing
time with family and our close friends. We got a chance to get away from all
the stress of life for a few moments, and felt like we got to take a breath. It
was a much needed and wanted chance to regain some hope and clarity!
Unfortunately, since we have been
back it seems like things have picked up right where we left them. Reed is still going through some testing,
procedures and following up with several doctors including a pulmonologist,
cardiologist, immunologist, gastroenterologist, endocrinologist, his
neurosurgeon & his dentist; which worries him the most!!
Reed is still not doing as well as
we were hoping he'd be doing at this point. We were told that Reed was a complicated case
with several problems happening at the same time and that it would take a while
to try and solve them all. There are so many different things that were wrong with
Reed that even the doctors commented that it was too much for such a young
person to be going through and more so all at one time. Although it is very difficult to wait for a
change to feel better, our visit to the Mayo Clinic gave us some hope and some
ways to start working towards getting Reed back to his normal self.
In May, while Reed was going through his series of testing
at the Mayo Clinic, Stacie was contacted by a specialist from the Mayo Clinic.
He believed he knew what might be causing a big portion of Stacie’s problems. He had been reviewing Stacie’s medical history
and her current symptoms and he felt she may have what is known as remnant
ovary syndrome. It is a rare condition
in which some ovarian tissue is implanted somewhere within the abdomen.
This little piece of ovarian tissue can generate its own
blood supply and respond like a normal ovary would to stimulation by FSH and
produce hormones and even create ovarian cysts. The doctor gave us several
tests she needed to have done and the results were sent to him. For the last
few weeks Stacie has been going through all the testing and it has taken a toll
on her. To make things even worse for
her she has come down with a severe case of Strep throat and a few days later she
found she also has the flu.
We have been trying to push through all of this and are fighting
to keep things going. We have been given some hope in that we have found out
that she will be having surgery down in Arizona at the Mayo Clinic. She is
scheduled to meet with the doctor on August 12th and will have surgery a
few days later. We are praying that this is the new found hope that we need
right now.
We are determined to not let this keep us down, it can’t & it
won’t!! We are stronger because of these trials and have come closer as a
family & closer to the Lord!
We are forever grateful for those who have supported us in
so many ways and continue to take our burdens upon themselves to keep us going.
They are nothing short of a miracles in our lives and we are blessed to be
surrounded by such great people!
Thank you so much, we love you!!
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