Thursday, December 25, 2014

A MESSAGE FROM OUR TENDER SOULS

We can’t say thank you enough to all of our family & friends who have blessed our lives in so many ways, especially this year. We are eternally grateful for the love & support that we have always been shown and continue to feel. You can’t imagine the amazing strength & power we have received when, during our most difficult time, so many of you responded to our call for help. We are so blessed that so many of you cared enough about us and were willing to sacrifice so much and to stand by our sides during this trying time. You have renewed our strength and our resolve to continue this fight and to keep moving forward with hope.

We feel we could never express our gratitude to the same degree in which your generosity and support have impacted our lives. We pray that you all know that not a day goes by that we do not thank our Heavenly Father for all of you and for reminding us of the many tender mercies that we have received.  May you all have a Merry Christmas and happy holidays!  We also hope you will all have a happy, and healthy, New Year!!

With Love,

Reed, Stacie, Payton & Camden

Kennington


Thursday, October 9, 2014

4 TENDER SOULS... Their Story - PART III


4 TENDER SOULS... Their Story - PART III


2009
Before our trip to Hawaii, Stacie had to go to the urgent care dentist where she had to get a root canal. A few days later she was still having some problems and they realized that they hadn't removed everything and they had to go back in to fix it.

While in Hawaii, Stacie started to get sicker with the tooth she had fixed in December. We called Reed’s uncle (a dentist) who was able to give us some advice, but it got to a point where he told us we needed to go to the ER.  It took a while because there was a big storm, but we found one in Honolulu.  Just as we started to register to be seen, the power was knocked out. We finished the registration by hand-writing the information, and they took Stacie to a room using a flashlight. When the doctor came in he had to check Stacie out using just the emergency flood lights and a flashlight; it was quite the experience. They were unable to get any testing done because they had no power, but he was able to start her on an antibiotic so that we could at least make it back home. We did and Stacie ended up having to have an apicoectomy. When it didn't work they decided that they just needed to pull the tooth to actually fix the problem.

It was also in January that we decided that with Stacie’s increasing endometriosis and health problems we had some decisions to make.  The doctors had cautioned us that the chances of Stacie getting pregnant were minimal but if we wanted another child we needed to do it soon, otherwise it may not happen for us.  We already knew that it was going to be a challenge as we had actually been trying to have another baby for almost two years, but if we wanted to have another child and a sibling for Payton, we needed to find a way to make it happen.

Also Reed started to have increasing numbness & pain in his lower back & legs. He underwent several transforaminal nerve root blocks and facet injections in hopes that it would help ease the pressure & numbness in his legs. They seemed to help for a few weeks, but eventually the symptoms returned. In April, he had a MRI of his spine and found that his disc degeneration had continued to progress, but surgery was not recommended.

Payton started to have more ear infections and was having a hard time hearing. We took him to a doctor who said everything was fine. We felt strongly that we needed a second opinion, and in April we found another ENT. The doctor checked Payton’s ears & found that the tubes he had were completely plugged and that tissue had grown over them. The doctor felt that Payton needed to have the tubes in his ears replaced and have his adenoids removed at the same time.  So in April Payton went in for surgery to replace the tubes and everything went really well.  As Payton started to wake up he started looking around and suddenly said “Mommy, I can hear again.” It made us feel so sad that Payton’s problem had become so bad that he was losing his hearing and we were unaware of it because he didn't know how to tell us.  

We also felt blessed that we had listened to our instincts and received a second opinion. We were extremely happy with the results even when the doctor discovered during the follow up visit the next day that a tube had pushed through the eardrum and into his ear canal. They had to go back into surgery to retrieve the tube and replaced it with a larger tube. The doctor commented that she had never seen that happen before. We just laughed thinking to ourselves that if only she knew how normal ‘abnormal’ was for our family!
 


By June, Stacie had developed another cyst and we went to see our family doctor. He, being a close friend by now, felt that Stacie needed to find someone that could give her some additional care and referred us to a new OBGYN, Dr. Haskett.  After having a consult with Dr. Haskett, he felt that with Stacie’s increasing symptoms, and to increase our chances of getting pregnant, Stacie would need to have another surgery.  We proceeded and Stacie went in again for what would be her 8th Laparoscopy. It was during the procedure that we found that Stacie had Grade 3 (out of 4) severity of endometriosis.




But things were not all bad. Payton had just started Preschool and loved it. It was a chance for him to get away from all the stress and sickness and meet some new friends. He loved going to his preschool class and learning new things. It was also at this time that Payton taught himself how to do the worm after seeing someone doing the worm on TV. He just turned to Reed and said “hey daddy, watch this.” He got down on the floor and started doing it and has been able to do it ever since.

Payton had also started playing soccer, and loved it. He started out when he was three years old playing at Timpanogos indoor soccer, then he played in the Lindon City league and then we tried North Utah County. He was a natural athlete, and loved playing soccer; it was a fun way for him to get through the stresses of our life. Payton wasn’t the only one to try new things though. Starting at the beginning of August, Stacie started Clomid in hopes that it would increase her chances of getting pregnant again.


In September, Reed started to have swelling that surrounded the area around his back incision. His Dr started to run several tests and they found a pocket of fluid that had collected in that area, but were unsure about how or why it was happening.

Also in September, Stacie started to have some lower abdominal pain, and when it had become too much for her to bear, the doctor ordered an ultrasound. They found yet another cyst but it was not large enough to risk going in for another surgery, having just recently had a surgery just two months earlier. We planned on following up 5 days later with a follow up ultrasound. When they completed the follow up ultrasound, they discovered that the cyst was a large complex cyst that was still growing; in fact it had doubled in size within a week. They planned the laparoscopy to remove the cyst, and prepared us that it could be an endometrioma; and due to how quickly & how large it had already grown, there was a possibility that they might have to remove Stacie’s ovary. So for the second time within two months, Stacie went in for her 9th laparoscopy to remove the cyst. The doctor also removed several endometrial implants that were found throughout her pelvis. The surgery went well and we were relieved when the doctor told us that he was able to save Stacie’s ovary. She stayed in the hospital for a couple days and was happy that she was able to make it out & to her sister Danielle’s wedding a few days later.




It first appeared during the 2009 flu season and quickly caused some fear & panic around the world. It was known as the H1N1 virus or “the swine flu “and as luck would have it, Payton came down with it & Stacie shortly afterwards. They were both given Tamiflu, an antiviral medication, and were advised to be quarantined. Payton ended up missing two weeks of preschool. About a week after Stacie & Payton were diagnosed with the Swine flu, Reed started to have the same symptoms and was quickly put on Tamiflu as well. We all made it through it, and in a few weeks we were all back to our normal life!



Due to how quickly Stacie was growing cysts and how much pain she was having while being on Clomid, the Dr advised us to stop the Clomid and go back on birth control to help manage her endometriosis.  By starting the birth control, it meant that we had to take a break on trying to get pregnant. We were told that we would not likely be able to have any more children, and that we needed to prepare ourselves for the idea of a hysterectomy if we were ever going to give Stacie a chance at a normal life.






2010

Winter was proving to be a hard time for Payton, when in January he came down with pneumonia. He was put on an antibiotic and started some breathing treatments. Payton would sit on Stacie’s lap and they would cuddle as he would receive his breathing treatments. Although it was not much fun, Payton was a trooper and would bravely endure them.  



Also in January, Reed went to see a neurosurgeon at the University of Utah to get a second opinion about his increasing back problems. They found that the degenerative disc disease had progressed, but they were worried that any surgical intervention would only accelerate the disease. He suggested that Reed consider the option of getting a spinal cord stimulator implanted in his back.  The stimulator is a small pulse generator that sends electrical pulses to the nerves in the spinal cord. These pulses interfere with the nerve impulses that make you feel pain. Reed started the process of getting approved for it.  

Enduring afflictions was quickly becoming a family motto as we continued to endure trial after trail. It quickly became a joke that with all the doctor appointments we were having, we thought of them as our date nights. Stacie had stopped the Clomid in hopes that it would limit the number of cysts she was growing, but her body had its own way of doing things. In late January she had another pelvic ultrasound done, and discovered that she had several small ovarian cysts and a small amount of adjacent free fluid, suggesting that she recently had a cyst that had ruptured.  We held off from surgery & hoped that her body would reabsorb the cyst and allow Stacie to recover without adding the trauma the body goes through with surgery.

Stacie made it all the way until the beginning of April when she had a significant increase in her symptoms. Given her severe pain and history of cysts, the doctor ordered another ultrasound. It revealed a new complex cyst on her ovary that was consistent with a possible endometrioma. The surgery was scheduled and Stacie proceeded with her 10th laparoscopy where they found & removed a cyst on each of her ovaries, as well as several endometrial implants that were found throughout her abdomen & pelvis. Given the severity of her disease and her recent surgical history, the doctor prepared us once again for the fact that we would have to consider a hysterectomy soon. Stacie’s endometriosis was already at stage 4 and she was having multiple cysts that continued to develop almost every month.

Following the surgery, Dr. Haskett suggested that we try a couple rounds of artificial insemination (IUI) up in Sandy at a fertility clinic as a way to increase our chances of becoming pregnant, as the door on our chances to have a baby was quickly closing.  He said that he would follow Stacie with blood work and ultrasounds to make sure she was not having more cysts develop, and it would also allow some of it to be covered by our insurance.  In May, we tried our first round of IUI.  If there was ever going to be a time for us to get pregnant, it was now.  Stacie had just had surgery to remove the implants of endometriosis, and he had flushed out the fallopian tubes to make sure they were clear of any obstructions. Her blood work showed the optimal levels to suggest getting pregnant and there were no other signs of illnesses to interfere with a pregnancy.  

Unfortunately it was not meant to be as we found out that in our first attempt with IUI resulted with an early miscarriage. We were extremely sad and very discouraged but told ourselves that it was only our first time and that we needed to dust ourselves off and keep going.   We decided to try it again the next month hoping that this time it was going to work.  Unfortunately, it did not work and our hope of having another baby was quickly slipping away.  It had become physically, emotionally and mentally draining to keep getting our hopes up only to experience disappointment and failure each time. We know that we were not alone in the struggle in getting pregnant; in fact we have many family & friends who continue to fight this exhausting battle.  What made our experience a little different was the fact that we were running out of time for which we could continue to even try for another child. 

As hard as it was to continue to try and fail, it was even harder for us to think about having the hysterectomy and losing the ability to even try for another child.  Payton was the biggest blessing in our lives and one of the greatest sources of happiness in our family.  We had always felt that our family was not complete yet and we knew Payton felt the same way as he was constantly asking if he could have another brother or sister, even putting it on his Christmas list as something he wanted for Christmas.  We wanted Payton to have a sibling, someone to bond with and someone to grow up with. It is why we continued to endure this hardship and try for another child. Stacie told Reed that she had a feeling that they should try it on our own without using IUI for the next month to see if it would happen.  

Stacie started Femara, a medication like Clomid, along with progesterone & we just prayed that this time would be the time that we would get pregnant. We decided that we would give it another month, and then if we were unable to get pregnant, we would then proceed with the hysterectomy.

During this time Reed continued to have increasing weakness in his legs and found it harder to walk and even sit. Reed was referred to an orthopedic specialist in Salt Lake City to be evaluated. After several tests, the doctor found that Reed had some new changes with a central spinal stenosis as well as bilateral foraminal stenosis on more than one level. He also found that Reed has some fibrosis and scarring that had grown around his nerve roots and they were starting to impinge on the nerves.  He still felt that with Reed’s diffuse degenerative changes, the best course of action was to try a series of selective nerve root blocks around the areas being impinged to see if it helped with the pain & numbness.

After trying for over 3 years to get pregnant and not succeeding we were all prepared to have a hysterectomy, which was scheduled to be done towards the end of the year. Stacie’s disease and symptoms had become too severe to wait any longer & it was putting Stacie at more of a risk for complications. Stacie had been to the doctor who took some blood work to follow up on some more symptoms that were increasing. The stress & emotional strain that comes with trying to have a baby had become overwhelming and one afternoon Stacie decided to go for a drive to see her Grandma and to take her mind off the situation. 

When she came home that day, Reed was there to greet her at the door.  Reed shared what happened that day when Stacie came home. “While Stacie was gone I looked up the results of her blood work and was astonished at what I was seeing.  Just then Stacie walked into the door and before she could shut the door I had her in my arms and broke the news to her.  One of the greatest moments in my life was when I held Stacie in my arms and told her that she was pregnant! We just stood in the doorway, with the door wide opened, held each other and cried. I just kept repeating “we are pregnant babe, we did it. We’re going to have another baby, we did it”. It was a moment and feeling that we will never forget.”

We went to the doctor the next day and he confirmed the pregnancy with another blood test and an ultrasound two days later.  Our due date was April 10th, which happens to be Stacie’s mom and dad’s anniversary (we were hoping that it meant good luck for us and our baby).  The doctor was overjoyed to finally be able to share some good news with us, since he had been there with us through so much.  That is why it was hard for him when about a week later he had to share some more bad news with us when after a follow up ultrasound they found that the pregnancy was being threatened due to not one but two cysts that had grown on Stacie’s ovaries. The concern was that the cysts were quickly becoming too large and could cause the ovary to twist over itself, cutting off the blood supply to the ovary and possibly causing Stacie to bleed internally. Having an ovarian torsion would threaten both the baby & Stacie’s life.

It was too early in the pregnancy to be able to go into surgery to remove the cyst as it could cause Stacie to miscarry the baby. After carefully weighing our options we made a plan to get Stacie and the baby to 17 weeks before having the surgery. At 17 weeks they thought they could remove the cysts without risking the safety of the baby. We would watch her closely and had many ultra sounds to keep an eye on the cyst and keep Stacie and the baby healthy. With all of the ultrasounds we were having we found out early that we were definitely going to be having a sweet baby boy!  It was fun to imagine Payton with his little brother and how much fun it would be to watch them grow up.  Knowing that this pregnancy would most likely be the last, we tried to take it all in and enjoy as much of it as we could. We were more than excited to meet out new little boy & we prepared ourselves the best we could for what was ahead of us but we had no idea just how hard it was going to be.


Right away Stacie was put on bed rest and continued on progesterone to help minimize the chance of her losing the baby. The doctor watched her very closely and she was in the office usually more than once a week.   To make matters worse, Stacie had severe morning sickness and would quickly become very dehydrated and weak. The doctor had Stacie sent over to the ER several times to get IV fluids and to be monitored. Then, when Stacie was about 12 weeks along, we received some heart breaking news. Stacie’s grandma, who she was very close to, sadly passed away.  To say that her grandma loved Payton was an understatement, and his feelings for her were the same.  We went to visit her regularly and would take her out and about often.  When we found out we were going to have another baby, Stacie and Payton went to tell Grams.  Stacie still remembers just how excited she was to hear that we were pregnant.  

As they were pushing her down the hall in her wheelchair at the assisted living place where she lived, she was telling everyone in sight with a huge smile on her face that she was going to be a grandma again.  It was a moment that Stacie still holds close to her heart.  We know that Grams, along with all of our other loved ones who have past, were up in Heaven preparing our new little one for us. 





The pain from the cyst, constantly throwing up, and losing her grandma and close friend had become too much for Stacie to handle, so starting at about 14 weeks into the pregnancy Stacie was having to be admitted to the hospital every other weekend for usually 2- 3 days to receive IV fluids and to monitor the baby. She was so sick that even by the 5th month of pregnancy she had only gained about 6 lbs and was hardly showing. Stacie even had to celebrate her birthday while in the hospital.



We were praying and hoping that the cysts would go away on their own, so that we didn't have to risk having surgery and losing the baby. Our prayers were answered when just before the 16th week, the ultrasound showed that the cysts had stopped growing and were actually beginning to get smaller. It was just what we needed to have happen and it made all of those long weeks of pain and suffering worth it.

We were so humbled and overwhelmed by the outpouring of love and support from our wonderful family and friends.  We had so many people helping us through this hard, but exciting time.  So many meals, shoulders to cry on and so many people helped with Payton.  Payton was 5 years old and in Kindergarten at the time and we had wonderful friends from our neighborhood, who would take him & pick him up from school every day.  It was such a blessing to us! There are not enough ways to thank everyone for all of the help that we received throughout the whole pregnancy; we feel very, very blessed.






2011
Once Stacie hit 34 weeks, our doctor decided to take her off the terbutaline and wait to see what would happen.  It only took a few days off of the medicine for Stacie to start back into Labor.  We went back to the hospital when the contractions became closer, and sure enough she was in labor.  Our doctor decided to give her a shot of terbutaline and monitor the baby to see what would happen.  The contractions slowed down and they felt ok sending her home on bed rest.



Our goal was to make it to at least 37 weeks so that our sweet baby boy could grow and develop more.  We had been counseled many times by the social workers, nurses and our doctor that we needed to be prepared just in case the baby needed to go to the NBICU, because it had been such a hard, stressful pregnancy. It was only about a week later she started having the same type of contractions, so back to the hospital we went.  This time, the doctor on call decided to try the shot again to try to stop the labor.  When the shot didn’t help, they decided to give her one more shot and monitor us.


It was frustrating, but we knew that the longer she was able to keep the baby inside, the better off he would do.  The second shot seemed to help and back home we went with strict orders to stay down.

The baby had been found to be breech in several follow up visits, and after an ultrasound on the 22nd, the doctor felt it was time to have the baby and scheduled Stacie to have a C-section on the 28th of March. During that same visit, they found that Stacie’s BP had increased to 150/99 mmHg and the doctor ordered some labs to check for any other problems. The following day, Stacie came back in to the hospital to finish her lab work and test. We were instructed to wait at the hospital until the results came back and then we would be told what to do at home. But things changed when after getting the results back they discovered that Stacie had developed HELLP syndrome. HELLP syndrome is a life-threatening liver disorder thought to be a type of severe preeclampsia. HELLP syndrome can be life-threatening for both the mother and the baby, and with Stacie’s increasing blood pressure and medical history, they admitted her right away and planned to have the C-section as soon as possible.

We were used to being sent home after every hospital visit, so we were happily surprised to find out that we were going to have the baby that night. It seemed unreal that the moment we had been waiting for was finally here, and we were finally going to meet our sweet little baby boy. We called our family and told them what was going on and to come to hospital as soon as they could.  As Stacie was getting set up and checked in she started to have pretty hard contractions and after another assessment they noticed that she was starting to have tremors, a complication from HELLPS Syndrome. The doctor came in and talked with us about what was happening and started Stacie on magnesium, which is used to prevent seizures, but it comes with awful side effects.

She had started to get a really bad headache & become very swollen, flushed and was very miserable and ready to have the baby.  As luck would have it, the hospital had five women come in after 5:30 pm that needed C-sections which, according to the staff, never happens.  Of course!!  Stacie was in full blown labor, having contractions every 1-2 minutes, swelling and feeling horrible because of the medications but we had to wait our turn like everyone else. Reed felt so bad for her because he knew she was in pain and feeling so miserable and there was nothing he could do to help her. But Stacie stuck it out and finally, after a few hours of anxiously waiting with our family, they had Reed change into a cute white jumpsuit and started to prep Stacie for the C-Section.

It was all a new and kind of scary process but the last several months had been such a fight that it made us so much stronger. It apparently made our boy stronger to because he didn’t want to come out just yet. He was definitely breech and stuck high up in Stacie’s ribs and hard to get out but after pulling and tugging he finally came.



Camden Mark Kennington came three weeks early, but weighed a healthy 7 lbs 11 oz and was 19 ½ inches long.  It was a beautiful thing to hear his sweet little cry as it signaled to us that the fight to get him here was finally over.  Suddenly the past few years of physical & emotional struggles seemed to diminish as all that mattered was that our perfect little boy was finally here, and he was so dang cute!





The best part was when Payton, who had tried to stay awake throughout the whole ordeal, was finally able to meet his new brother as we wheeled Camden down to the nursery. 





Stacie had a rough first night as her body was
still adjusting from the medications given to her earlier for HELLP syndrome and the surgery and she started throwing up. You can imagine how much fun that is when you just had your stomach cut open. During the delivery Stacie remembered hearing the doctors discuss the amount of endometriosis that they could see on her uterus and in her abdomen.  There was so much to think about, especially about a hysterectomy, but all that mattered was that Camden was here and we were doing well.  We were so happy, our little family was perfect!



Camden became jaundice after the first day and had to be under the lights for the next three days, which was hard because he had to spend most of his time in the nursery.  By the time we were ready to come home, his weight had dropped to 7 lbs and his blood levels were still high. He was sent home with lights and we had to bring him back to the hospital every day to check his levels.  At first, the levels kept going up almost to the point of re-admitting him to the hospital. Luckily after one week on the lights, his levels were low enough so that he did not have to spend his days and nights on the lights anymore. As luck would have it Heather, the one who would draw Camden's blood test, would later marry Brandon, one of Reeds best Friends!


We were in heaven with our new little guy, and time seemed to fly by.  He was such a good baby and Payton was the best big brother.  Payton was constantly around Camden helping to take care of him, holding him and even reading books and singing songs to him. It seemed that all the stress and hardship we had just gone through was erased, and happiness was the only thing we felt. Camden came to our family at a time where we needed it the most. There is no doubt in our minds that it was a way for our Heavenly Father to show us that we were not forgotten and that he knew what we needed at the time we needed it.



During the first few weeks after the birth, Stacie continued to have pain and cramping that came from getting so sick and then having the C-section & it became unbearable.  Stacie still continued to follow up with her doctor often and the decision was made that when she had made it to six weeks postpartum, she would have the hysterectomy.  This was such a hard decision to make, but with a lot of praying and priesthood blessings from Reed and Stacie’s dad, we felt like this was the only way to stop the disease from progressing and allow Stacie to have somewhat of a “normal” life again.





As the surgery date got closer and closer, it was becoming harder to grasp the thought of losing the ability to ever have another baby, especially the possibility of a daughter, and we started to wonder if we were making the right choice.  Deep down, we both knew that Stacie needed to have the Hysterectomy in order for her to hopefully feel better.  Our doctor explained all of the benefits and risks to us and the surgery was scheduled for May 9th.  Stacie tried to enjoy every minute with her boys and did not take one moment for granted with their new little family. 



May 9th came, and it was a day we will never forget.  It has been hard to write about and recall all of the details of this tough event in our lives because it has been something so personal, and we have realized that we still have not fully recovered from it yet.  We have never gone into too many details with many people and we feel a little vulnerable opening up with so much detail with this part of our lives, but to be honest it has been therapeutic in a way. We have tried to make something of this trial and realize just how lucky we are to be surrounded by the most wonderful family and friends that we could have ever asked for.  It is because of their continued love and sacrifice that we have been able to get through all of these trials. We have always known, but now to a larger degree, just how much our faith plays a huge role in the way we choose to look at these trials. We know that the Lord is there for us and will never let us walk alone. 

Reed and Stacie’s dad gave her a special priesthood blessing the night before, that gave her a peace and comfort that she needed to go on with the surgery.  We gave the boys a big hug and kiss and off we went to the hospital early that morning. It was hard not to be a little sad, this was a life changing surgery, even though we felt like our family was complete with our two beautiful boys. The main reason for this surgery was for Stacie to finally feel good again and for her to feel like the wife and mother she wanted to be.  Reed already knew she was a wonderful wife and mother, but he wanted her to feel well again and to able to live the life she deserved to live. 

Stacie was brought back and prepped for the surgery; they even gave her an epidural to help with the pain after.  The plan was to try to do a Laparoscopy, but when they got in there they quickly realized that she would need to be cut open through her C-section scar because her uterus had adhered to her bladder.  They also removed her right ovary and they were surprised with the amount of endometriosis that had grown.  They did their best of getting all of the endometriosis that they could, but they couldn't get it all. The doctor came out after and told Reed about the surgery and that it had gone well and that she would be in the hospital for a few days for them to watch her very closely.  He mentioned that they kept her left ovary and he hoped that it would prevent Stacie from having to start hormone replacement therapy.

Originally, the plan was to immediately put an estrogen patch on her to help in regulating her hormones, but since she had so much endometriosis, she would have to be completely off any hormones in order to hopefully kill it off.  Endometriosis continues to grow as it feeds off estrogen, so the idea was to limit the amount of estrogen Stacie produced in hopes that it would starve the endometriosis and it would eventually die off. The doctor said he knew it would be really hard for Stacie, but this was the only way to hopefully get rid of it all.  He also told Reed he would be in daily to check on her.

Stacie remembers waking up as she was being wheeled to her room, and Reed was walking by her side. At the hospital they put their women post op patients on the Pediatric unit, which also happened to be where she was admitted many times during her pregnancy and became friends with the nurses that were going to be taking care of her after this surgery.  As the day went on, Reed and Stacie noticed that her heart rate was slowly increasing and her blood pressure was getting lower.  Reed mentioned it to the nurses, but they didn't see any immediate danger and were not overly concerned about it.  Having worked around critical patients every day, Reed knew that it wasn’t a good sign and again expressed his concern about what was happening.  They said they would watch her closely as Reed left to go pick up Payton so that he could come to see Stacie.  Although he was a little worried to leave, Stacie assured him that she would be ok.



Stacie finished eating her dinner and sat her bed up to pump, when she started to feel like she was going to pass out.  Luckily, the night nurses walked into her room right then and asked her if she was ok; we know for a fact she was being watched over. Stacie says she remembers telling them that she was not feeling very good and then the next thing she remembers was seeing white lights.  Her blood pressure had dropped to 47/23 and the nurses ran in and kept trying to talk to her & asking her if she was ok.  They said that she looked grayish and her pulse was very faint.



They called a rapid response code and all Stacie remembers was that it was like an out of body experience, seeing white lights and thinking “oh no, not now”.  She said she couldn't move and all she could do is think about her boys and Reed and that they needed her. They had waited for so long for Camden that this couldn’t be happening! Primary songs were going through her head and she was praying so hard that things would be ok.  Meanwhile, lots of people where in her room trying to stabilize her.  Her only IV line had blown and they could not get another one in, they were poking all over her arms, hands and even tried to get some into her feet but they could not get another IV started.  She said she remembers praying that they could please just get an IV in. They finally decided to try to get an IV in her neck and that finally worked!!  They pushed the fluids, and were able to put in another IV in her arm as a backup, but by that point her body had started to shut down

A few min after they called the code, Reed arrived at the hospital with Payton, who was so excited to see his mom. We have thought, and cannot imagine, what would have happened if it was Reed and Payton that came into Stacie’s room and found her first instead of the nurses.  Reed said when he called to the nurses station to give them the code to buzz him in he noticed something was different.  They told him to stay there and that they would meet him at the door.  Reed knew at that moment that something had gone wrong. The nurse met Reed at the door and explained that something had happened to Stacie and that she needed to escort Reed and Payton to another room where she would explain everything. As they walked passed Stacie’s room, Reed’s heart dropped as he saw Stacie lying in bed, motionless and with her bed tilted head down. He saw a several nurses in the room running around and working at her side, her feet and at her head trying to get a line started in Stacie. It is a scene that Reed was very familiar with and often experienced working around critical patients.

The nurse took Reed & Payton to a toy room where she explained to Reed what had happened as Payton was playing with the toys. Over the last several months Payton had become very protective of Stacie and would become very worried whenever Stacie was sick or in the hospital.  It was all Reed could do to hold back his tears as the nurse went through the events so that Payton would not find out what was happening.  Stacie’s mom, Debbie, came to see Stacie right at that moment and remembers passing Stacie’s room and having a very sick feeling. She saw all the commotion around Stacie and then saw Reed talking with a nurse in the next room. By the look on Reeds face she knew something had happened and she started to tear up. But Reed hugged her and told her that we needed to be strong so that Payton would not get scared.  It seemed like hours before they allowed Reed to come in to see Stacie while Debbie played with Payton, and when she was awake enough that they felt it wouldn’t scare him, Debbie brought Payton in so he could finally see his mom.

They had our doctor on the phone throughout the entire event and he felt that she was too unstable to take her back into surgery.  Instead, they kept her fluids running and took lots of blood work. Her kidneys were not working well and her hematocrit had dropped extremely low.  When she was stable enough they sent her down to get a CT scan, of course Reed went with her, to locate where she was hemorrhaging and to check for blood clots in her lungs. It was determined that Stacie had started bleeding internally, most likely coming from one of the surgical staples used to clamp off the artery leading to her ovary coming loose. They started a blood transfusion and she ended up having to have three units of blood to replace the blood she had lost. 





After a couple of days we were finally able to bring Camden in so that Stacie could hold him since she had been asking to see him ever since she had been awake. She was also able to come home after a few more days of monitoring.







The hardest part for Stacie was when she finally realized the severity of what had just occurred. It happened when she got home and had her two boys surrounding her that she realized just how close she had come to not making it and how close she had come to losing her boys and husband. It was almost too much to handle and all that was on her mind.  This event caused her to have PTSD and she struggled with that for a while.  She even continued to have an extremely low blood pressure and heart rate, especially at night.  It got the point that she wouldn’t dare to go back to sleep in fear that she wouldn’t wake up. She would wake Reed up and ask for a priesthood blessing often and that helped calm her down enough for her to sleep.

 In June Reed was now to the point where he was unable to sit, stand or even lay down for a long period of time without having his legs go numb. It was decided in July that it was time for a discography of his lumbar spine to look for a cause of his symptoms. During the test, it was determined that his disc degeneration had progressed and that there was a problem with his L4-L5 lumbar disc. He had an MRI the next day & it was confirmed, as well as a spinal cyst was discovered. He met with his neurosurgeon and they scheduled a surgery in August to have his 3rd back surgery and 2nd level fused.

In August, we returned once again to the operating room when the doctor discovered that Stacie had developed a hemangioma that was growing quickly. The surgery to remove the hemangioma went well and we were relieved when the pathology came back & that it was benign.




Our opportunities for making hard decisions kept coming as we now had to decide  on what we needed to do to help Reed.  It was another hard decision we had to make because they knew that an additional surgery could speed up the degenerative disease and could cause more problems for Reed. With all that could go wrong, we still felt that it was the only answer right now to give Reed some relief from his numbness and pain. With careful thought, some wise counsel, and a lot of prayer we proceeded with the surgery and on August 19th, Reed went in for his 3rd back surgery.  We quickly found out why we felt so comfortable with our choice to go into surgery as the doctor discovered a surprising reason for Reeds symptoms.



As soon as the surgeon got through the scar tissue and fascia, he found that Reeds’ L4-5 interspinous ligament and all his facet ligaments were completely torn apart and had made that level extremely unstable.  He reported that with just a little bit of pressure on his L4 disc the interspinous space would open enough to let his finger slide down to the dura. He was so impressed with how torn it was that he took several pictures of it just so he could show us and have it on record. He also located the cyst compressing on Reed’s spine, but it was hard to remove due to the amount of scar tissue which had grown around it. He was eventually able to remove the scar tissue and cyst, and fuse the levels with screws and bolts. He was confident that the surgery was successful and that it would help Reed feel much better. Reed started to notice the difference with numbness and weakness almost right away, but he was having a lot of pressure around his incision.  The pressure continued to increase, and then when it started to bleed, we knew it was a problem.


We called the doctor's office and they tried to ease our fears by telling us that a little blood was normal. It wasn’t until we showed up at the doctor's office and showed them in person that they finally realized just how bad it was. They found that a large hematoma had developed under Reed’s incision and that the pressure was pushing the blood out where the staples were. We kept the staples in for a week longer so that the hematoma would have a chance to resolve and so that incision would not split open under the pressure. After the week, all 35 staples were removed and Reed couldn’t have been happier.

After the staples were removed and swelling started to go down, Reed was starting to feel a little better and we were hopeful things were slowing down for us. But if our past had taught us anything, it was that when things started to go well it often meant that something was just around the corner.



Stacie was still having problems with her blood pressure, her hormone levels, and increasing pain. After consulting with the doctor we determined that the best option for Stacie was to remove the other ovary and see if there was any endometriosis still growing. We were hoping that the endometriosis would be all but gone after the hysterectomy, and that the removal of the ovary would be the final step to get rid of the disease once and for all.  So with mixed emotions Stacie had her 11th laparoscopy to remove her left ovary and any remnant of endometriosis found.



We were surprised to learn from the doctor that during the surgery he found that the endometriosis had spread throughout her abdomen and pelvis. It was shocking just how much had grown, especially since Stacie had been off her hormones which should have kept the tissue from growing. The doctor said it looked like a cancer patient or that a bomb had gone off inside her with implants spread everywhere. He had never seen it that severe, especially having a patient who was recently pregnant and off her hormones.  He removed as much as he was able to and then removed Stacie’s ovary.  The surgery went well, and after a few days Stacie was able to come home.


Since Stacie now had both ovaries removed, she had to start hormone replacement therapy. She was referred to a wonderful hormone doctor to help get her started. They ordered a lot of blood work and tests. When the results came back, we learned that Stacie had even more going on than we had thought. It was then we learned that Stacie had Hasimoto disease, an autoimmune condition in which your immune system attacks your thyroid gland, and Sheehan syndrome, a condition in which severe bleeding during or after childbirth causes damage to the pituitary gland.  We started to treat and manage the symptoms that Stacie was having, but she still had to go into IV therapy almost twice a week.

After a few weeks, we were allowed to continue to run the treatments at home, and Reed was able to give her IV fluids which saved a lot of time and travel. It also gave Stacie a chance to own her very own IV pole which she loves!!

In Oct, Reed had finally given into the fact that he was not able to hear things very well. Reed had some hearing problems when he was young and had to have some tubes put in his ears which helped him hear again. But he had noticed that he was unable to hear people speak to him and finally went to see a specialist. They ran a hearing test and found that he did in fact have some hearing loss. After an MRI and additional testing, they found that he had conductive hearing loss most likely due to the amount of scar tissue that had formed on his ear drums. The loss was significant enough that Reed qualifies for hearing aids, but Reed has yet to decide if he wants to give up his only excuse to get out of things he is asked to do!!





Having problems with the ears seemed to be shaping up to be a genetic problem, as both Reed & Payton had to have surgery on their ears at a young age. Now Camden wanted in on the fun, and in December, Camden went in for surgery to have tubes put in his ears. He had been having problems with croup and ear infections and the doctor felt that it was time to get the tubes put in to help with the infections. He did great with the surgery and after waking up from the anesthesia he was back to his cheerful happy playful self.






The last few years, particularly this year, had really taken a toll on us. We were left to feel discouraged, broken and tired as we came to the end of the year. But we also realized that it was at this time that we would have been having our hysterectomy if we had not been blessed to have our precious new little boy.  We could see the tender mercies that were given to us along the way and that they came at the moments when we didn't know how to go on.

As usual, our wonderfully amazing family and friends were there to pick us up at times when we thought we couldn't do it anymore.  We grew stronger as a family and closer to the Lord as our faith had been tried and tested.  We feel so extremely lucky to know of the many sacrifices that so many people have made and continue to make in our behalf.   The continued love and support that has surrounded us has made us feel stronger and we felt a new found hope that no matter what trials would come our way, we knew we were never going to have to go through it alone. It would be a necessity for what was ahead of us over the next few years.


“The tests of life are tailored for our own best interests, and all will face the burdens best suited to their own mortal experience. In the end we will realize that God is merciful as well as just and that all the rules are fair. We can be reassured that our challenges will be the ones we needed, and conquering them will bring blessings we could have received in no other way.” Elder Jeffrey R. Holland

Friday, August 29, 2014

UPDATE: Post-Mayo Clinic

We are sorry it’s taken a bit for an update since we've been back from the Mayo Clinic... With so much going on it's hard to find the time to write down our story in our own words...

Things have been a little crazy and busy and this recovery has been more difficult than we had anticipated, and on top of all that, Stacie is now also battling pneumonia.

At the Mayo Clinic Stacie ended up in the hospital a few extra days for complications from surgery and she didn't get released until Sunday. At our follow-up appointment Monday, the Doctor was concerned about a possible infection or bowel obstruction and ordered more testing. As always with our insurance, we had to wait and were scrambling on deciding what to do. After consideration and another consultation with the Doctor, he felt like we needed to do the testing even if we had to pay for it. 

We trusted what he said and got all the tests done and met with him the next day. We were able to be released Tuesday with strict instructions from the Doctor on what to watch for. It ended up being okay because we were able to avoid the huge monsoon that came through and were able to make it home safely. We feel so blessed that these doctors have been guided by the spirit with what to do. They listened and found things that would have eventually been a very big problem if they had been left untreated. 

For a little update on Reed, he had another round of steroid injections in his back yesterday and next week he will have the Bravo Study and a biopsy of his small bowel with the hopes of getting more answers. 


We are so grateful for all the thoughts and prayers on our behalf and for all of the help that we've received; weather it’s been meals, airfare and travel arrangements, help with our sweet boys, a shoulder to cry on, donations and so much more. Our hearts are full and we truly feel blessed. Having surgery so far from home was even more difficult than we could ever have imagined but we are so grateful for the expert care we received and I know I was in great hands.


We also want to thank our family and friends for caring for our boys during this difficult time and I would like to thank Reed for how he has cared for me and never even complained! 


The Lord’s timing is hard to understand sometimes and we feel like our faith has been tried with the whole Mayo Clinic experience. We are grateful to know and understand that it doesn't always work out the way we would have wanted it or the easiest way, but somehow it always seems to work out. We are learning so much and are most indebted to our Savior for all He went through for us and for all that He does for us!


As for the boys...


Payton has started 4th grade along with soccer; which has kept him so busy and happy. He also just received his Wolf in Scouting, and we are so proud of him. 

Camden starts preschool soon and he is very excited for that, and he can’t wait to play soccer just like his big brother.


We have the BEST family and friends and are so EXTREMELY THANKFUL for all that you continually do to help make things a lot easier for our family. WE LOVE YOU ALL!!!

Friday, August 15, 2014

A NEW HOPE FOR STACIE - Stacie's Surgery Update

We wanted to update everyone on Stacie’s status... 


On Tuesday, August 12th,  Stacie met with the specialist here at the Mayo Clinic Hospital. He felt that Stacie was at the point that she needed to have surgery and we scheduled it for the next day. We arrived early and after several blood tests and last minute adjustments they took Stacie back into the O.R. for her surgery. She had a few procedures done during the almost 3 hour surgery, including a diagnostic laparoscopy, excision and stripping of endometriosis throughout her lower abdomen, pelvis & colon, a cystoscopy and even a mini laparotomy. 



During the surgery they discovered an endometriosis implant located on her lower bowel and, when attempting to remove it, the bowel opened up. They were able to contain it and repaired it without having to do a bowel resection! (yet another Tender Mercy) They found that the endometriosis implant had grown into the bowel to a point where it was almost completely through the wall; which made that part of her colon very unstable. 




We were lucky that they discovered it here, during the surgery, where they were able to contain and quickly fix it before it caused major complications. The surgeon felt that the surgery went well but they will be keeping Stacie here a few more days in the hospital to make sure there are no more complications. The recovery has been a little rough but Stacie is doing well, considering what she has just gone through, and she is looking forward to coming home to her boys hopefully early next week! 


We are overwhelmed with the generosity, love and support that is shown to us on a daily basis! We are where we are today because so many of you have stepped in to lighten, and even have carried, our burdens when we felt we just couldn't do it anymore. 

We look forward to the day where we can strengthen and support others at the level you have all shown us. We are blessed to have our faith, our family & our friends! 

Thank you so very much. We love you all!!!

Monday, August 4, 2014

TM4TS - UPDATE AUG 2, 2014




We first wanted to say THANK YOU for all those who made it possible for us to have an amazing trip and an experience; one we thought we would never be able to have!!! We know it was a sacrifice for several of our family and friends and we are indebted to their kindness!






We had an amazing time with family and our close friends. We got a chance to get away from all the stress of life for a few moments, and felt like we got to take a breath. It was a much needed and wanted chance to regain some hope and clarity!






Unfortunately, since we have been back it seems like things have picked up right where we left them.  Reed is still going through some testing, procedures and following up with several doctors including a pulmonologist, cardiologist, immunologist, gastroenterologist, endocrinologist, his neurosurgeon & his dentist; which worries him the most!! 

Reed is still not doing as well as we were hoping he'd be doing at this point. We were told that Reed was a complicated case with several problems happening at the same time and that it would take a while to try and solve them all. There are so many different things that were wrong with Reed that even the doctors commented that it was too much for such a young person to be going through and more so all at one time. Although it is very difficult to wait for a change to feel better, our visit to the Mayo Clinic gave us some hope and some ways to start working towards getting Reed back to his normal self.

In May, while Reed was going through his series of testing at the Mayo Clinic, Stacie was contacted by a specialist from the Mayo Clinic. He believed he knew what might be causing a big portion of Stacie’s problems.  He had been reviewing Stacie’s medical history and her current symptoms and he felt she may have what is known as remnant ovary syndrome.  It is a rare condition in which some ovarian tissue is implanted somewhere within the abdomen. 

This little piece of ovarian tissue can generate its own blood supply and respond like a normal ovary would to stimulation by FSH and produce hormones and even create ovarian cysts. The doctor gave us several tests she needed to have done and the results were sent to him. For the last few weeks Stacie has been going through all the testing and it has taken a toll on her.  To make things even worse for her she has come down with a severe case of Strep throat and a few days later she found she also has the flu. 

We have been trying to push through all of this and are fighting to keep things going. We have been given some hope in that we have found out that she will be having surgery down in Arizona at the Mayo Clinic. She is scheduled to meet with the doctor on August 12th and will have surgery a few days later. We are praying that this is the new found hope that we need right now. 

We are determined to not let this keep us down, it can’t & it won’t!! We are stronger because of these trials and have come closer as a family & closer to the Lord!

We are forever grateful for those who have supported us in so many ways and continue to take our burdens upon themselves to keep us going. They are nothing short of a miracles in our lives and we are blessed to be surrounded by such great people! 

Thank you so much, we love you!!

Thursday, May 29, 2014

4 TENDER SOULS... Their Story - PART II

2005…

In January of 2005, and because of the ectopic pregnancy the previous August, the doctor monitored Stacie very closely. So when Stacie started to have signs and symptoms that could threaten another miscarriage, the doctor made the decision to put her on bed rest. This meant that Stacie would have to quit her full time job and that we would lose our benefits and insurance. To say that we were a little concerned would be quite an understatement! How were we going to make it several more months with Stacie being pregnant having no insurance and losing a big source of our income?!  

Reed's new job, although part time, was able to give him a few more hours each week. We also made the decision to sell one of our cars and Reed would just have to walk to school each day, and also to work when needed. We were also fortunate enough at the time to be managers of some student housing apartments. It was a great opportunity and experience for us and we were able to get through some tough times because of some of the benefits it had. We were able to have some assistance with managing the apartments because we knew the previous managers; in fact we are related to them. Todd and Alison (Alison is Reed’s older sister) were managers before us and were always willing to train us and help us out when things became difficult. But it’s when things became difficult for them that they helped us the most.

We were extra excited about being pregnant because Alison was also pregnant and was due only 10 weeks ahead from Stacie! We were both pregnant with boys, the first grandsons/nephews on all sides of the families, so there was a lot of excitement from everyone! There was great anticipation that these two first boys would be so close in age and have the chance to be great buddies.

We were on a trip with Stacie’s family in April when we received a call from Alison with devastating news… She had been having some complications and ended up having to have an emergency C-section about 5 weeks prior to her due date. She delivered her baby boy (whom they named Brandon) but he was very, very sick and they had to transport him up to Primary Children’s Hospital. She told us that we should not worry about them and to just enjoy the rest of our trip.

When we got home from our trip we found out that Brandon was not doing very well at all. We were able to go up and see him and we will always remember the strength and bravery Alison and Todd showed as they explained what was happening and let us meet our newest family member.  They had a certain courage about them, and it was the kind of strength that you can't only see, but you can feel just being around them… and they remain this way, even to this day.

Unfortunately, Brandon was only here for a short time… after a brave fight Brandon passed away in May in the arms of his mother, father and two sisters. We had all gathered together as a family and were present when he took his last breath. It was extremely hard to watch our sister and brother go through that experience and we just ached for them because of their loss; and in the same sense, we wondered about how we would be able to handle such a trial. We were extra sensitive to the situation because we were about to have our own baby boy and, after such a major tragedy, we were concerned that our joy and excitement in having our boy would make the loss of theirs even harder for them.

But, being the type of people they are, they already knew of our concern and took it upon themselves to make sure that our experience was as special and happy as possible.  They showed us what it meant to forget about oneself and to lose oneself in the service of others. We will be forever grateful for how they handled their own extreme trial with courage, faith and continued love and service to others, because it has always given us a positive example on how to handle ours.


Along with the loss of our dear nephew, Brandon, another trial was already starting to appear on the horizon. During that same time Reed started noticing that he was losing more strength in his legs and having more numbness as he was walking to and from school. Reed was sent to see a neurologist and found that the bulge they had found in his spine in 2000 was now herniated, and they found he also had a degenerative disc disease. The doctor said he needed to have surgery soon or else Reed could have permanent nerve damage. The doctor knew Stacie was pregnant and wanted Reed to be there for her and the baby, so he scheduled Reed for surgery in June so that he could be in the healing process when the baby came.  


In June 2005 Reed underwent his first back surgery with a fusion at L5-S1. It was a hard recovery but the symptoms started to improve and strength started to return to his legs. It was hard for Reed as well because he had to have Stacie, who was almost 8 months pregnant then, help him in and out of bed, help him put his shoes on and she had to drive everywhere. It was also hard for Reed to have the neighbors watch as Stacie would carry in all the groceries and things inside from the car... while Reed carried in the car keys! If you know Reed, he’d never leave Stacie alone to do the heavy work, especially while pregnant, so being left helpless in that regard was challenging for him.

We often laid together in bed, neither one of us wanting to move, and laughed about the situation we were in. It was a difficult time but sacrificing for each other, despite being in pain ourselves, just showed how strong our love for one another had become. It also showed us how to be stronger when the other is weaker because we would both have our moments of each! (We would like to note that Reed now carries in more than just the car keys!)

  In August of 2005 our son, Payton, was born! He took his time with coming into this world and after 30 hours of hard labor and a few complications he joined our family. He was the biggest blessing we had in our lives and continues to bless our lives today!  He was the sweetest little baby and was always happy and smiling, making him the center of attention wherever we went.  He brought so much joy and happiness into our family.  

We feel that the Lord blessed us with Payton at this particular time because He knew that he could be the tough little cookie we needed and that he could have the faith and strength of dealing with the continued declining health of both his parents.  It definitely hasn't been easy but he has always made things worth fighting for.  He has a sweet and tender heart and still continues to be a pillar of happiness and strength for our family.

We knew that pregnancy could suppress the endometriosis from growing for a while, but we soon discovered that the pregnancy did not suppress everything. Stacie’s body had been through so much in such a short amount of time that it was unable to defend itself from multiple infections. She started having more upper respiratory infections and sinusitis that would not resolve, even after five different antibiotics. After four months of struggling with the infections, doctors ordered a CT scan and in late December and they found that her maxillary sinus was underdeveloped and was unable to drain properly. This was only propelling the infections she was having which were why the antibodies alone were not effective.


2006…

With increasing infections, abdominal/flank pain and a history of endometriosis and cysts, they performed an abdominal CT scan which revealed that Stacie had a cyst that had grown in her right kidney. It was benign and since she had already had so much happen it was decided that we would only monitor for any changes at that point.

Stacie was still getting sinus infections and doctors determined that her sinuses were abnormal and not able to drain properly, which was causing more infections. In February she underwent a sinus surgery to reconstruct her sinuses. She did not do as well with the surgery and was not recovering like they thought she would. During her follow appointment they discovered that scar tissue had grown and fused together, obstructing the opening they had just created. They ended up having to cut out the scar tissue right there in the office, which was very painful for her and a memory she wishes she could forget.

After removing the scar tissue her sinus problems seemed to do better but Stacie suddenly became sicker. She started running fevers as high as 104, had headaches and was vomiting. They diagnosed it as lymphadenitis, an infection within her lymph nodes.  We treated her for the infection but she was not responding well to the treatments. When she started getting weaker and started to faint we found ourselves in the ER. That is when they diagnosed her having Cytomegalovirus (CMV). In just weeks she had lost over 15 lbs., and it was already affecting her liver. She was put on bed rest for about a month trying to get her body back to normal. It was especially hard because Payton was still so small needed to be cared for was well as Stacie. Family came to the rescue and Stacie’s mom even came and cared for Payton while Stacie was down.

During the first week in July we moved from Cox Apartments to Park Plaza to help be assistant managers for our close friends.  Stacie came down with strep throat right before the move and soon after got extremely sick with a really bad kidney infection called pyelonephritis.  The doctor said that she had one of the worse cases that he’d seen.  She had to go in everyday for a week for IV antibiotics and fluids to help clear up the infection.

Throughout all of this Stacie continued to have pelvic pain and cysts. In August she had a cyst rupture and underwent her fourth laparoscopy. They found her endometriosis had progressed.




As if there wasn't enough happening at this point in time, the health problems continued… only this time Payton joined the unfortunate group. Through the year, Payton also had his fair share of sickness.  He had problems with his stomach and had several bouts of croup. After having several ear infections and upper respiratory infections Payton had a set of tubes put in his ears to help with the infections. He was brave and recovered quickly and in no time was back to his busy active self.



  
  


Through the months Reed’s back pain never fully improved after his fusion surgery. He was still experiencing pain from the incision on his hip where they had removed some bone to use for the fusion and he continued to have swelling around his back incision as well as muscle spasms and numbness. The doctor believed that his body was reacting to the metal used for the fusion and in November they determined that it needed to come out. He did improve a little bit after he recovered from that surgery.  




 Although so much continued to go on, Reed continued to work and go to BYU so that he could finish his classes/degree. Reed was still on weight/lifting restrictions and used a backpack on wheels to get around. During each class he would stand in the back of the classroom because he still could not sit for more than 15 minutes at a time.  It was very hard for him to walk from class to class fast enough to make it to class on time, and that semester Reed’s classes were spread throughout the large campus. Reed was fortunate enough to have his father, who worked for the university, take time out of his day to pick Reed up after each class and take him to his next class.  Reed was able to attend all his classes and finish that semester because of his father’s help. It was yet another example of how our family sacrificed and kept us going.  Stacie was so proud of Reed and his determination to finish school.

In December, Payton had become the sickest that he had ever been when he was diagnosed with RSV.  He was given nebulizer treatments and steroid treatments which we continued at home.  It was so hard to see our sweet little boy having to go through so much, but through it all he remained strong and happy... for the most part.




2007…
In an effort to find a way to decrease some of the abdominal and pelvic pain, Stacie had a cystoscopy done and they found that she also had interstitial cystitis; just another problem that was causing her to have constant, intense pain. She also started seeing a doctor at University of Utah where she underwent several weeks of trigger point injections to help control her increasing pain. She was brave, but having 12-15 injections in her abdomen each session was wearing on her and she had to take a break.

As a graduation gift for Reed, from Stacie’s parents, we went with Stacie’s family on a trip to New York. During the trip Stacie started to get really sick. When we got back we took Payton to his 2 year checkup and his Doctor noticed Stacie was not doing very well. After examining Stacie the doctor immediately called the hospital to let them know he was sending her over because he felt she was having appendicitis. We checked into the emergency room and within an hour Stacie was in surgery removing her appendix, which was massively inflamed and close to rupturing. During the surgery the surgeon called in her OBGYN doctor because of the extreme amount of endometriosis that he had found while removing her appendix. Her doctor came in and removed the tissue. We were able to get two procedures done at the same time which gave Stacie’s 5th laparoscopy its own unique story!





We were not sure if it was because of leaving him in August for our trip or if Stacie having another surgery had stressed him out more, but Payton ended up getting really sick again and we had to do another round of nebulizer treatments and steroid treatments as he was again diagnosed with RSV.


  





2007 was another eventful year, but this time we were able to end it with positive milestone. After enduring so much and trying to keep up with everyday life, Reed was able to graduate with bachelor’s degree in Exercise Science from BYU. It was a major accomplishment for our family and yet another blessing in our lives!






2008…

Stacie continued to have some infections and sinus problems and in February she saw a new doctor. He found that the first surgery had never completely corrected the sinuses and that another surgery was needed to be done to correct the septum and reconstruct the sinuses. The surgery went well and although she had her scar tissue fuse again, this process seemed to go much more smoothly.



In May she underwent her 6th laparoscopy and tried a lidocaine pump that she had in for a week as a way to manage the pain.  The results of that laparoscopy lasted for a few months but after the pain quickly intensified they found that she had another cyst rupture and that another needed to be removed.  







In Aug 2007 Stacie went in for her 7th laparoscopy surgery. It was amazing and alarming with how quickly her endometriosis had continued to return and how fast it was progressing. It seemed to be consuming her and destroying everything in its path.  But through it all she remained positive and Payton was a big reason why. He was always concerned for his mom and dad and couldn't wait to see mom after surgery. He loved to climb into bed with her to cuddle from the moment he walked into her room to the moment we would have to leave.



We had another eventful year and although rough, we made it!  We were spoiled at the end of the year because we were fortunate enough to go to Hawaii with Stacie's family during Christmas where we were able to get away from everything and enjoy just being together. The fact that we were snorkeling in tropical water and hanging out on the beach rather than shoveling snow and avoiding black ice seemed to help as well.



 Although, we had such a… let’s just say… interesting first few years as a family, we have always felt so blessed and thankful for all of our amazing family and friends and all of their continued love and support.  We have felt the Lords loving hands throughout it all.  In writing down all of our history, it’s made us realize just how much we have been blessed and  we've been able to see the small and big tender mercies that the Lord has blessed us with.  At times, it may have been harder to see and feel that, but we know that without the love of our Savior and the many, many thoughts and prayers by those surrounding us and lifting us up, we would not be who we are today!