Thursday, May 29, 2014

4 TENDER SOULS... Their Story - PART II

2005…

In January of 2005, and because of the ectopic pregnancy the previous August, the doctor monitored Stacie very closely. So when Stacie started to have signs and symptoms that could threaten another miscarriage, the doctor made the decision to put her on bed rest. This meant that Stacie would have to quit her full time job and that we would lose our benefits and insurance. To say that we were a little concerned would be quite an understatement! How were we going to make it several more months with Stacie being pregnant having no insurance and losing a big source of our income?!  

Reed's new job, although part time, was able to give him a few more hours each week. We also made the decision to sell one of our cars and Reed would just have to walk to school each day, and also to work when needed. We were also fortunate enough at the time to be managers of some student housing apartments. It was a great opportunity and experience for us and we were able to get through some tough times because of some of the benefits it had. We were able to have some assistance with managing the apartments because we knew the previous managers; in fact we are related to them. Todd and Alison (Alison is Reed’s older sister) were managers before us and were always willing to train us and help us out when things became difficult. But it’s when things became difficult for them that they helped us the most.

We were extra excited about being pregnant because Alison was also pregnant and was due only 10 weeks ahead from Stacie! We were both pregnant with boys, the first grandsons/nephews on all sides of the families, so there was a lot of excitement from everyone! There was great anticipation that these two first boys would be so close in age and have the chance to be great buddies.

We were on a trip with Stacie’s family in April when we received a call from Alison with devastating news… She had been having some complications and ended up having to have an emergency C-section about 5 weeks prior to her due date. She delivered her baby boy (whom they named Brandon) but he was very, very sick and they had to transport him up to Primary Children’s Hospital. She told us that we should not worry about them and to just enjoy the rest of our trip.

When we got home from our trip we found out that Brandon was not doing very well at all. We were able to go up and see him and we will always remember the strength and bravery Alison and Todd showed as they explained what was happening and let us meet our newest family member.  They had a certain courage about them, and it was the kind of strength that you can't only see, but you can feel just being around them… and they remain this way, even to this day.

Unfortunately, Brandon was only here for a short time… after a brave fight Brandon passed away in May in the arms of his mother, father and two sisters. We had all gathered together as a family and were present when he took his last breath. It was extremely hard to watch our sister and brother go through that experience and we just ached for them because of their loss; and in the same sense, we wondered about how we would be able to handle such a trial. We were extra sensitive to the situation because we were about to have our own baby boy and, after such a major tragedy, we were concerned that our joy and excitement in having our boy would make the loss of theirs even harder for them.

But, being the type of people they are, they already knew of our concern and took it upon themselves to make sure that our experience was as special and happy as possible.  They showed us what it meant to forget about oneself and to lose oneself in the service of others. We will be forever grateful for how they handled their own extreme trial with courage, faith and continued love and service to others, because it has always given us a positive example on how to handle ours.


Along with the loss of our dear nephew, Brandon, another trial was already starting to appear on the horizon. During that same time Reed started noticing that he was losing more strength in his legs and having more numbness as he was walking to and from school. Reed was sent to see a neurologist and found that the bulge they had found in his spine in 2000 was now herniated, and they found he also had a degenerative disc disease. The doctor said he needed to have surgery soon or else Reed could have permanent nerve damage. The doctor knew Stacie was pregnant and wanted Reed to be there for her and the baby, so he scheduled Reed for surgery in June so that he could be in the healing process when the baby came.  


In June 2005 Reed underwent his first back surgery with a fusion at L5-S1. It was a hard recovery but the symptoms started to improve and strength started to return to his legs. It was hard for Reed as well because he had to have Stacie, who was almost 8 months pregnant then, help him in and out of bed, help him put his shoes on and she had to drive everywhere. It was also hard for Reed to have the neighbors watch as Stacie would carry in all the groceries and things inside from the car... while Reed carried in the car keys! If you know Reed, he’d never leave Stacie alone to do the heavy work, especially while pregnant, so being left helpless in that regard was challenging for him.

We often laid together in bed, neither one of us wanting to move, and laughed about the situation we were in. It was a difficult time but sacrificing for each other, despite being in pain ourselves, just showed how strong our love for one another had become. It also showed us how to be stronger when the other is weaker because we would both have our moments of each! (We would like to note that Reed now carries in more than just the car keys!)

  In August of 2005 our son, Payton, was born! He took his time with coming into this world and after 30 hours of hard labor and a few complications he joined our family. He was the biggest blessing we had in our lives and continues to bless our lives today!  He was the sweetest little baby and was always happy and smiling, making him the center of attention wherever we went.  He brought so much joy and happiness into our family.  

We feel that the Lord blessed us with Payton at this particular time because He knew that he could be the tough little cookie we needed and that he could have the faith and strength of dealing with the continued declining health of both his parents.  It definitely hasn't been easy but he has always made things worth fighting for.  He has a sweet and tender heart and still continues to be a pillar of happiness and strength for our family.

We knew that pregnancy could suppress the endometriosis from growing for a while, but we soon discovered that the pregnancy did not suppress everything. Stacie’s body had been through so much in such a short amount of time that it was unable to defend itself from multiple infections. She started having more upper respiratory infections and sinusitis that would not resolve, even after five different antibiotics. After four months of struggling with the infections, doctors ordered a CT scan and in late December and they found that her maxillary sinus was underdeveloped and was unable to drain properly. This was only propelling the infections she was having which were why the antibodies alone were not effective.


2006…

With increasing infections, abdominal/flank pain and a history of endometriosis and cysts, they performed an abdominal CT scan which revealed that Stacie had a cyst that had grown in her right kidney. It was benign and since she had already had so much happen it was decided that we would only monitor for any changes at that point.

Stacie was still getting sinus infections and doctors determined that her sinuses were abnormal and not able to drain properly, which was causing more infections. In February she underwent a sinus surgery to reconstruct her sinuses. She did not do as well with the surgery and was not recovering like they thought she would. During her follow appointment they discovered that scar tissue had grown and fused together, obstructing the opening they had just created. They ended up having to cut out the scar tissue right there in the office, which was very painful for her and a memory she wishes she could forget.

After removing the scar tissue her sinus problems seemed to do better but Stacie suddenly became sicker. She started running fevers as high as 104, had headaches and was vomiting. They diagnosed it as lymphadenitis, an infection within her lymph nodes.  We treated her for the infection but she was not responding well to the treatments. When she started getting weaker and started to faint we found ourselves in the ER. That is when they diagnosed her having Cytomegalovirus (CMV). In just weeks she had lost over 15 lbs., and it was already affecting her liver. She was put on bed rest for about a month trying to get her body back to normal. It was especially hard because Payton was still so small needed to be cared for was well as Stacie. Family came to the rescue and Stacie’s mom even came and cared for Payton while Stacie was down.

During the first week in July we moved from Cox Apartments to Park Plaza to help be assistant managers for our close friends.  Stacie came down with strep throat right before the move and soon after got extremely sick with a really bad kidney infection called pyelonephritis.  The doctor said that she had one of the worse cases that he’d seen.  She had to go in everyday for a week for IV antibiotics and fluids to help clear up the infection.

Throughout all of this Stacie continued to have pelvic pain and cysts. In August she had a cyst rupture and underwent her fourth laparoscopy. They found her endometriosis had progressed.




As if there wasn't enough happening at this point in time, the health problems continued… only this time Payton joined the unfortunate group. Through the year, Payton also had his fair share of sickness.  He had problems with his stomach and had several bouts of croup. After having several ear infections and upper respiratory infections Payton had a set of tubes put in his ears to help with the infections. He was brave and recovered quickly and in no time was back to his busy active self.



  
  


Through the months Reed’s back pain never fully improved after his fusion surgery. He was still experiencing pain from the incision on his hip where they had removed some bone to use for the fusion and he continued to have swelling around his back incision as well as muscle spasms and numbness. The doctor believed that his body was reacting to the metal used for the fusion and in November they determined that it needed to come out. He did improve a little bit after he recovered from that surgery.  




 Although so much continued to go on, Reed continued to work and go to BYU so that he could finish his classes/degree. Reed was still on weight/lifting restrictions and used a backpack on wheels to get around. During each class he would stand in the back of the classroom because he still could not sit for more than 15 minutes at a time.  It was very hard for him to walk from class to class fast enough to make it to class on time, and that semester Reed’s classes were spread throughout the large campus. Reed was fortunate enough to have his father, who worked for the university, take time out of his day to pick Reed up after each class and take him to his next class.  Reed was able to attend all his classes and finish that semester because of his father’s help. It was yet another example of how our family sacrificed and kept us going.  Stacie was so proud of Reed and his determination to finish school.

In December, Payton had become the sickest that he had ever been when he was diagnosed with RSV.  He was given nebulizer treatments and steroid treatments which we continued at home.  It was so hard to see our sweet little boy having to go through so much, but through it all he remained strong and happy... for the most part.




2007…
In an effort to find a way to decrease some of the abdominal and pelvic pain, Stacie had a cystoscopy done and they found that she also had interstitial cystitis; just another problem that was causing her to have constant, intense pain. She also started seeing a doctor at University of Utah where she underwent several weeks of trigger point injections to help control her increasing pain. She was brave, but having 12-15 injections in her abdomen each session was wearing on her and she had to take a break.

As a graduation gift for Reed, from Stacie’s parents, we went with Stacie’s family on a trip to New York. During the trip Stacie started to get really sick. When we got back we took Payton to his 2 year checkup and his Doctor noticed Stacie was not doing very well. After examining Stacie the doctor immediately called the hospital to let them know he was sending her over because he felt she was having appendicitis. We checked into the emergency room and within an hour Stacie was in surgery removing her appendix, which was massively inflamed and close to rupturing. During the surgery the surgeon called in her OBGYN doctor because of the extreme amount of endometriosis that he had found while removing her appendix. Her doctor came in and removed the tissue. We were able to get two procedures done at the same time which gave Stacie’s 5th laparoscopy its own unique story!





We were not sure if it was because of leaving him in August for our trip or if Stacie having another surgery had stressed him out more, but Payton ended up getting really sick again and we had to do another round of nebulizer treatments and steroid treatments as he was again diagnosed with RSV.


  





2007 was another eventful year, but this time we were able to end it with positive milestone. After enduring so much and trying to keep up with everyday life, Reed was able to graduate with bachelor’s degree in Exercise Science from BYU. It was a major accomplishment for our family and yet another blessing in our lives!






2008…

Stacie continued to have some infections and sinus problems and in February she saw a new doctor. He found that the first surgery had never completely corrected the sinuses and that another surgery was needed to be done to correct the septum and reconstruct the sinuses. The surgery went well and although she had her scar tissue fuse again, this process seemed to go much more smoothly.



In May she underwent her 6th laparoscopy and tried a lidocaine pump that she had in for a week as a way to manage the pain.  The results of that laparoscopy lasted for a few months but after the pain quickly intensified they found that she had another cyst rupture and that another needed to be removed.  







In Aug 2007 Stacie went in for her 7th laparoscopy surgery. It was amazing and alarming with how quickly her endometriosis had continued to return and how fast it was progressing. It seemed to be consuming her and destroying everything in its path.  But through it all she remained positive and Payton was a big reason why. He was always concerned for his mom and dad and couldn't wait to see mom after surgery. He loved to climb into bed with her to cuddle from the moment he walked into her room to the moment we would have to leave.



We had another eventful year and although rough, we made it!  We were spoiled at the end of the year because we were fortunate enough to go to Hawaii with Stacie's family during Christmas where we were able to get away from everything and enjoy just being together. The fact that we were snorkeling in tropical water and hanging out on the beach rather than shoveling snow and avoiding black ice seemed to help as well.



 Although, we had such a… let’s just say… interesting first few years as a family, we have always felt so blessed and thankful for all of our amazing family and friends and all of their continued love and support.  We have felt the Lords loving hands throughout it all.  In writing down all of our history, it’s made us realize just how much we have been blessed and  we've been able to see the small and big tender mercies that the Lord has blessed us with.  At times, it may have been harder to see and feel that, but we know that without the love of our Savior and the many, many thoughts and prayers by those surrounding us and lifting us up, we would not be who we are today!

Tuesday, May 13, 2014

4 TENDER SOULS... Their Story - PART I

2001...

     Our story began in January 2001 when Reed returned home from serving an LDS mission in Sydney Australia and started working at Kneaders Bakery 11 days after. Stacie had just gotten a job there one week before and thought from the moment Reed walked in that she had met the man of her dreams. We officially started dating in March and we quickly fell madly in love and October 12th of that year we were married. We were young and in love and having so much fun, we couldn't be happier.


2002...

     One day in January of 2002 we were discussing our day with each other when Stacie suddenly doubled over with severe abdominal pain. When it didn't subside we went into the Emergency room where they discovered a large ovarian cyst that had grown large enough that she needed surgery. It was during that first, of what would be several laparoscopy surgeries, that they diagnosed Stacie with endometriosis. This new and frightening experience gave us a chance to prove our love for each other with a challenge right out of the gate as newlyweds.

     It seemed we had just recovered from this experience when we would be tested yet again when Stacie had to have her tonsils removed. Several bouts of Strep throat had warranted for a tonsillectomy which she had in June of 2002. The surgery went well but Stacie was extremely sick from the procedure. She was constantly nauseated and throwing up and unable to eat. After about a week she started to throw up blood and we quickly called the surgeon. He instructed us to try a few things and if the bleeding persisted we were to call him and go to the ER where he would be waiting for the call. The bleeding increased and we found ourselves in the ER at about 10:00pm that night.

     We gave them the number that the surgeon had given us and we waited for him to show up. Hours passed by and there was no surgeon. At around 4:00 am he showed up very frustrated because he had fallen asleep fully dressed at home waiting for a call from the ER, which was never made. He was concerned with Stacie’s condition because she had been bleeding for so long and had become very anemic. Reed assisted him while he tried to cauterize the bleeding but he was unable to stop it while in the ER and the decision was made to take Stacie back into the operating room for her 3rd surgery in eight months.

     Her luck continued when in September of 2002 she had another laparoscopy after she had an ovarian cyst rupture. During that surgery they discovered her endometriosis had progressed.



2003...

     We had made it through a rough first year of marriage and looked forward to a fresh start when in January of 2003 our luck changed again. Reed and Stacie both worked at the hospital at this time, Reed in the Operating Room and Stacie in Mother Baby.  Reed received a call from the hospital one Sunday afternoon to ask him to come to the hospital because Stacie had been badly burned while at work. She had received 2nd & 3rd degree burns to both of her lower arms when a water basin collapsed and spilled its boiling contents all over her.




     The rest of the year seemed to go by much better until December when Stacie continued to have abdominal pain & it was discovered she needed to have her Gallbladder removed.



2004...

     After going through so much in such a short amount of time we expected Stacie to be exhausted but when it became so bad that she couldn't even function she was tested and diagnosed with mononucleosis in March of 2004

     Then, in August of 2004, we received the best news since we had been married! We took Stacie to the ER for increasing abdominal pain and the Doctor announced to us that Stacie was pregnant. We were overjoyed and the nearly three yearlong streak of bad luck seemed to have been finally broken!

     But the excitement was soon changed to fear when the pain became more and more severe. A couple days later we found ourselves waiting for emergency surgery because a second ultrasound had revealed that the pregnancy was an ectopic pregnancy and needed to be removed quickly for Stacie’s safety.

     We will never forget the disheartening phone calls we made to our parents to inform them we had lost the baby and that Stacie was getting ready for yet, another emergency surgery. She made it through the surgery well but the emotional toll that had accompanied this surgery had made recovery one of our hardest yet.

     During this same time, Reed was also dealing with challenges of his own. While on his mission in Australia, Reed awoke one morning to find that both legs were numb and he was unable to move them. He pushed his legs off the bed and sat up until the feeling returned in his legs. He had thought at the time that they had just fallen asleep, as if he had laid in a position wrong to cause them to become numb. After a day or two Reed started to experience extreme weakness in his legs and started to have problems getting out of a car and walking. It wasn’t until another missionary, being concerned after witnessing Reeds failed attempt to get out of a car, called the mission president to report what was happening and that a problem was found. He had an emergency transfer down to the city and after a MRI they found Reed had a bulged disc. Reed was able to go through physical therapy and was able to finish out his mission.

     As Reed continued working to provide for them, attending BYU in pursuit of a degree and eventual medical career and taking care of Stacie, his back problems worsened. Along with various doctors’ appointments and other treatments, in August 2004, Reed began receiving steroid shots in an attempt to assist with his back problems. These would be the first steps towards what would become a long battle to reclaim a healthy spine.

     However, our hope for a better future was restored when in November 2004 we were miraculously surprised with the news that Stacie had become pregnant again! 


     It was an uplifting and inspiring way end our year... after a very challenging first few years of marriage….

Monday, May 12, 2014

MEET OUR 4 TENDER SOULS...

4 Tender Souls - Reed, Stacie, Payton & Camden


Reed... grew up in Pleasant Grove, Utah, and is the 3rd oldest of eight children; the oldest of 5 boys. Reed grew up being very active and loved playing sports. He played Basketball, Baseball, track & field and soccer; which he played the last few years of his high school years for Pleasant Grove high school. Reed also joined a junior ballroom dance team after his older sister asked him to help with her dance coach's team. He began to compete up to a national level and was awarded a scholarship to Brigham Young University. He completed a semester of school before leaving to serve a 2 year mission in Sydney Australia for the LDS church. After he returned home he met Stacie and they were married on October 2001.  Reed graduated from Brigham Young University in 2007 with a Bachelor’s degree in Exercise Science. He started working in the operating room at Utah Valley Regional Medical Center in Provo Utah in 2002 & he is currently the Exercise Physiologist in Cardiac Rehab where he has taken care of patients with heart disease for the last 10 years.






Stacie... grew up in Orem/Lindon , Utah, and is the oldest of five children, she has 2 brothers and 2 sisters.  She loves to dance, play in the water, and traveling with her family.  She has been going down to Lake Powell and to Bear Lake since she was little and loves to salome ski and wake board.  She received her Certified Nursing Assistant during her senior year at Pleasant Grove High School and was lucky enough to get her dream job a month after she graduated working in Mother Baby at Utah Valley Regional Medical Center.  She loved working there and was sad to have quit in 2005 when she was put on bed rest after becoming pregnant with their first son.  Now she loves being a stay at home “soccer” mom where she takes pride and joy in all their accomplishments.




Reed & Stacie... met in January of 2001 about a week after return home from a mission in Sydney Australia. Reed started working at Kneaders Bakery and as luck would have it Stacie had been working there for about a week.  We were a close group of friends there and often socialized outside of work playing games having dinner and what not. Having all that extra time together allowed for Stacie & Reed to get to know each other and in of March of 2001 Stacie asked Reed out on their first date. They were destined to be together, a match made in heaven, and they sealed the deal in October of 2001. They later added two amazing boys Payton & Camden to their family.








Payton... is eight, and is such a wonderful and amazing son.  He has a very tender and giving heart and is a great big brother! He loves school, playing with his friends, singing and dancing (he taught himself how to do the 'worm' at four years old), and all sports.  He is very athletic and has been playing soccer since he was three.  He plays for the Rangers soccer club and for the past year he has been on their U9 X-League teams; who are doing really well and are so much fun to watch!  When he was five and a half, he was so excited to finally become a big brother!  He and Camden are best buddies and Camden just idolizes him.








Camden




Camden... just turned three, and is the little light of our family.  It took us a long time to get him, but we are so grateful for his energy and cute little personality.  To say that he has energy is a big understatement, he definitely keeps us going.  He loves his big brother and always wants to be just like his “big bro Payt”.  He loves to sing and dance and is also very athletic.  He loves to be outside and playing all kinds of sports (it’s surprising that he is already really coordinated, he takes after his dad and Payton for sure).  He has a huge imagination and is always making us laugh.


Payton & Camden


During our 13 years of marriage, and as a family, we have had more than 25 surgeries, dozens upon dozens of procedures, multiple sicknesses, and infinite amounts of testing & endless doctor visits. We have had trials and hardships that are unique and some that many others face, such as car problems, financial problems and with schooling & work. 

But through it all we have been able to come out of each challenge stronger than ever. We have a strong & happy marriage with a unique bond that is not easily describable. We have two beautiful and amazing boys who make us so proud and happy. They have been our inspiration to keep going and we would do anything to see them happy. 

Our lives have been tried & tested but we have felt blessed and are very happy.  We have been truly humbled and awe struck to see the love and support our family & friends have not only shown for us but have proven to us in our time of need. There are not enough ways to say thank you for all that we have been given and shown throughout the years.  Our lives have been touched and made better because of the wonderful amazing people we have surrounding us. We know and realize God’s hand in all of it and see and feel of the many tender mercies that have changed us forever!



Friday, May 9, 2014

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Tuesday, May 6, 2014

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